Kristen Kenzig's Memorial

Information Links For Brain Tumors

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Rating Site Name DescriptionVisitedDate Added
Score = 3 The Musella Foundation For Brain Tumor Research & Information 516-295-4740 The organization that maintains Virtualtrials.com! 3052103/29/00
Score = 3 NCI PDQ on Adult Brain Tumor Patient Information 3024003/29/00
Score = 3 Cancer Help Infosite Editable Web Site with cancer resources accross the globe 2975405/12/05
Score = 3 Coma Recovery Association A non-profit organization founded in 1980 by the family members of comatose patients. We offer mutual aid and support, support group meetings, general information, referrals and advocacy. 2964808/19/00
Score = 3 Addresses of Childrens Resource Organizations Resources for childrens cancer 2963103/29/00
Score = 3 The James Crofts Hope Foundation Inc. Australian Site. The Foundation is committed to providing assistance for families of patients with brain tumours, and also to the advancement of the treatment and research of these conditions. 2960707/26/03
Score = 3 Brain Tumor Canada Online support group for brain tumor patients and caregivers living in Canada 2960502/24/07
Score = 3 Adult Patient Resource Handbook of Brain Tumors From Oncolink 2959103/27/00
Score = 3 The National Information Center for Children and Youth with Disabilities Provides information on disabilities and disability-related issues for families, educators, and other professionals. Our special focus is children and youth (birth to age 22) 2883103/29/00
Score = 3 The Department of Clinical Neurological Sciences at the University of Western Ontario. This site serves as an introduction to the Division of Neurology and as an educational forum for neurologists, residents, and practicing physicians around the country and abroad. 2819804/03/00
Score = 3 Oncolinks Automated Listserv Subscriber Page Large list of Cancer Listservs 2817303/27/00
Score = 3 Brain Cancer - Gliosarcoma - 41-year-old female - her story Brain Cancer - gliosarcoma - 41-year-old female - her story 2811903/29/04
Score = 3 PedJobs The official employment resource for the American Academy of Pediatrics 2808206/17/05
Score = 3 NCI Cancernet Physicians Data Query (PDQ) NCI database that contains the latest information about cancer treatment, screening, prevention, genetics, and supportive care, plus clinical trials. 2794703/29/00
Score = 3 National Institute of Health Medline Plus Cancer Trial search 2778703/27/00
Score = 3 Decadron By Dr. Bruce Cohen Co-director of Brain Tumor Clinic at Cleveland Clinic What you need to know about this often prescribed steroid drug for reducing the swelling in brain tumors. 2777003/27/00
Score = 3 Brain Tumor Biology Laboratory Oliver Boglers fascinating brain tumor research site. 2725803/27/00
Score = 5 Meningioma Mommas An online support group for women with meningioma brain tumors. 2712602/27/03
Score = 3 Brain Tumors: Symptoms, Therapy and Future Cure By Patrick J. Kelly, MD, FACS NYU 2711703/27/00
Score = 3 National Institute of Health Home Page Offers health information, grants and funding opportunities for research. 2703004/03/00
Score = 3 Childhood Brain Tumor (PDQ®) Treatment - Patients Cancernet Information for patients on Childhood Brain Tumors 2700103/28/00
Score = 3 Adult Ependymoma of The Brain - A Patient`s Story data-packed (verified true) written in plain english by a patient 2695309/04/04
Score = 3 Boston Neurosurgical Foundation A multi-institutional neurosurgical team in Boston, Massachusetts serving Brigham and Women`s Hospital, Children`s Hospital, The Dana-Farber Cancer Institute and Harvard Medical School 2664004/02/00
Score = 3 It`s Just Benign website connecting benign brain tumor survivors 2652405/30/08
Score = 3 The Brain Tumor Foundation of Canada Supports research into the cause and cure of brain tumors 2634703/27/00
Score = 3 Seeking Peace: Brain Tumor Hospice Care Describes a list of end-stage "signs" to watch for to prepare for death from a brain tumor 2618611/30/06
Score = 3 Court and Shalane`s battle with brain cancer Step-by-step journey of 2 young adults fighting this devistateing illness. 2565508/14/06
Score = 3 Dr. Judah Folkman Article from Scientific American-Thalidomide, TNP470 etc Fighting Cancer by Attacking its Blood Supply-Angiogenesis Inhibitors 2563103/27/00
Score = 3 Bereavement Support Listserv for survivors of brain tumor patients 2558403/28/00
Score = 3 Astrocytoma Types and Therapy from NYU Patrick J. Kelly, M.D., FACDS 2554803/28/00
Score = 3 Kyla`s Page 24 year old fighting brain cancer family web site 2554310/17/02
Score = 3 Jim Kenzig`s Astrocytoma Links Links for Astrocytoma 2546903/28/00
Score = 3 Brainstem Tumor Mailing List- For Patients, Caregivers, Doctors and Researchers. Moderated by Jim Kenzig 2524803/28/00
Score = 3 The National Braintumor Foundation 800-934-CURE A not for profit organization that offers valuable resources for brain tumor patients and funds brain tumore research 2506903/27/00
Score = 3 My Cancer News Cancer treatment search engine finds news of newest treatment...plus financial help for cancer patients and families. 2500101/25/03
Score = 3 British Columbia Cancer Agency . - Lots of good info; special segment on Alternative treatments 2499803/28/00
Score = 3 NCI/PDQ Physician Statement: Childhood supratentorial primitive neuroectodermal and pineal tumors NCI PDQ 2491003/29/00
Score = 3 Boston Medical Center CyberKnife Boston Medical Center`s CyberKnife program offers state of the art, image-guided robotic radiosurgery with frameless technology 2466903/10/09
Score = 3 AboutKidsHealth Brain Tumour Resource Centre is a comprehensive, interactive, accessible resource for families of children with a brain tumour. 2459612/19/05
Score = 3 St. Jude Children`s Research Hospital Pediatric Brain Tumor Program 2456704/04/00
Score = 3 The Healing Exchange BRAIN TRUST Internet-based support groups for people who have brain tumors and other neurological abnormalities. 2447204/24/01
Score = 3 Corporate Angels Network Free Airfare This organization provides free air travel via corporate jet for ANY cancer patient who requires treatment at any nationally recognized treatment facility, without regard to their financial resources 2443503/27/00
Score = 3 Chordoma Support Group 2395609/26/04
Score = 3 UCLA Neuro-Surgery Program The Clinical Neuroscience Program at UCLA has consistently been ranked in the top 10 in the nation. 2380204/04/00
Score = 3 Coalition for the Advancement of Medical Research (CAMR) Medical Research Advocates 2380003/05/04
Score = 3 Center For Glioma Outcomes Research The GO Project is a voluntary, physician-directed project to improve outcomes for patients with glioma. 2378504/02/00
Score = 3 Shared Experience Cancer Support Searchable listing of first-hand accounts by cancer patients and their loved ones. 2369904/03/00
Score = 3 Locks of Love how people can donate hair for wigs for people losing hair to chemotherapy 2365510/18/01
Score = 3 MedFriendly Free medical dictionary with easy to understand entries. 2351005/01/02
Score = 3 The Brain Tumor Center at Duke in Durham, North Carolina dedicated entirely to the treatment and cure of brain and/or spinal cord tumors in children and adults 2350404/02/00
Score = 3 Angel Flight America Free / discounted air fare for brain tumor patients 2329505/06/02
Score = 3 Katie`s Kids for the Cure Exists to find a cure for brain tumors in children. The mission is to fund innovative and creative brain tumor research, both clinical, and basic science. 2323403/29/00
Score = 3 All Experts Experts from many fields volunteer thier time to answer questons - free of charge - on broad range of topics, like brain tumors, computers, law, love. If you have a computer problem, this is the fastest place to get an answer! 2316104/02/00
Score = 3 Radiation Therapy for Pediatric Brain Tumors -Slide presentation 2305004/03/00
Score = 3 Remembering Rachel A memorial site for our daughter who lost her life to a glioblastoma multiforme brain tumour 2304904/03/05
Score = 3 Faith Emily Altbush This site is dedicated to the memory of our daughter who was taken from us by a diffuse pontine glioma. We have included a number of articles to help you understand what Faith endured, how much she meant to us and how we coped with her illness 2304601/06/02
Score = 3 Bill Beaton`s Tumor-Be-Gone Blog My Dad is GBM patient fighting to beat the odds. 2301006/09/06
Score = 3 University of Pittsburgh Center For Image-Guided Surgery Largest Gamma Knife Experience in North America 2295203/29/00
Score = 3 Late Radiation Deafness in Children with Brain Stem Tumors Abstract 2289903/29/00
Score = 3 Mimi`s Story: Her Journey with GBM A memorial diary which chronicles my mother, Charlotte`s, journey with Glioblastoma Multiforme: onset of symptoms, diagnosis, medical options, hospice care, her passing and afterwards. One woman`s story through the eyes of her daughter. 2279503/13/08
Score = 3 Glivec Discussion Group A discussion group for persons interested in the new cancer treatment drug, Glivec. 2273803/07/01
Score = 3 Search Medline for Glioblastoma Multiforme Custom Search of Medline for Abstracts 2268203/28/00
Score = 3 Silvanlord (David Ellis) has a brain tumor. David Ellis, diagnosed with a pineal germinoma at 17, writes about his brain tumor. 2206010/23/02
Score = 3 BT Buddies A website for high grade brain tumour patients, their families, friends and caregivers living in the UK. 2178201/28/09
Score = 3 Ann Simon`s fight against glioblastoma A personal journey, including information about trials 2148305/15/06
Score = 3 Analysis of a popular technique for estimating the location of the posterior fossa in children with Medulloblastoma Author: Joel W. Goldwein, M.D., David B. Solit 2140803/29/00
Score = 3 Scott Vickroy`s survivor story Aggressive treatment over 9 months included high-dose chemo and a stem cell rescue 2135903/18/02
Score = 3 The American Cancer Society Cellular Phones and Risk of Brain Tumors This column is provided to help practitioners discuss potential environmental and workplace carcinogens, offering reassurance when patients` fears are unfounded and focusing legitimate concern when they are warran 2134210/24/02
Score = 3 Agydaganat.info - Sandor Czirjak Md, P.hD., D.Sc. Neurosureron homepage Hungarian and english language website: brain tumors, pituitary, epilepsy, surgery 2111904/30/07
Score = 3 Colorado Neurological Institute`s Center for Brain & Spinal Tumors CNI`s Brain Tumor Center has a comprehensive team approach 2108403/18/02
Score = 3 Search Medline for Chordoma Custom Search of Medline for Abstracts 2097503/28/00
Score = 4 Brain TUmor Survivor Brain Tumour Survivor is a positive site of hope for those living with a brain tumour. A site dedicated to discussing survivorship, treatment options available now and those options on the horizon that show promise. 2093211/17/05
Score = 3 About Acoustic Neuromas from the Brain Surgery Information Site 2075403/28/00
Score = 3 State of the Art in the Treatment of Medulloblastoma/Primitive Neuroectodermal Tumors with Radiation Therapy by Joel W. Goldwein, M.D 2072403/28/00
Score = 3 The National Childrens Cancer Society 1-800-5-Family The N.C.C.S. provides direct financial assistance and emotional support to children with cancer and their families nationwide 2071204/03/00
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Disclaimer: These links and information are provided for information purposes only. The author of this page claims no responsibility for any of the content provided by these sites. The worldwide web can sometimes contain false or misleading information. Use this information at your own risk and discretion. Always obtain a qualified physicians advice before starting any treatment.
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This page is maintained by Jim Kenzig
In Memory of
Kristen Kenzig who died from a Pontine Brain Stem Glioma in Sept. 1997 at age 10.
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Jim Kenzig
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