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Rating Site Name DescriptionVisitedDate Added
Score = 3 NCI PDQ on Adult Brain Tumor Patient Information 2997303/29/00
Score = 3 Cancer Help Infosite Editable Web Site with cancer resources accross the globe 2941805/12/05
Score = 3 Addresses of Childrens Resource Organizations Resources for childrens cancer 2937503/29/00
Score = 3 Adult Patient Resource Handbook of Brain Tumors From Oncolink 2933003/27/00
Score = 3 Coma Recovery Association A non-profit organization founded in 1980 by the family members of comatose patients. We offer mutual aid and support, support group meetings, general information, referrals and advocacy. 2932008/19/00
Score = 3 The James Crofts Hope Foundation Inc. Australian Site. The Foundation is committed to providing assistance for families of patients with brain tumours, and also to the advancement of the treatment and research of these conditions. 2927707/26/03
Score = 3 Brain Tumor Canada Online support group for brain tumor patients and caregivers living in Canada 2921002/24/07
Score = 3 The National Information Center for Children and Youth with Disabilities Provides information on disabilities and disability-related issues for families, educators, and other professionals. Our special focus is children and youth (birth to age 22) 2857603/29/00
Score = 3 Brain tumor treatment options Brain tumor treatment options 2856712/03/13
Score = 3 The Department of Clinical Neurological Sciences at the University of Western Ontario. This site serves as an introduction to the Division of Neurology and as an educational forum for neurologists, residents, and practicing physicians around the country and abroad. 2795904/03/00
Score = 3 Brain Cancer - Gliosarcoma - 41-year-old female - her story Brain Cancer - gliosarcoma - 41-year-old female - her story 2795103/29/04
Score = 3 Oncolinks Automated Listserv Subscriber Page Large list of Cancer Listservs 2791903/27/00
Score = 3 PedJobs The official employment resource for the American Academy of Pediatrics 2773906/17/05
Score = 3 NCI Cancernet Physicians Data Query (PDQ) NCI database that contains the latest information about cancer treatment, screening, prevention, genetics, and supportive care, plus clinical trials. 2766303/29/00
Score = 3 Decadron By Dr. Bruce Cohen Co-director of Brain Tumor Clinic at Cleveland Clinic What you need to know about this often prescribed steroid drug for reducing the swelling in brain tumors. 2754903/27/00
Score = 3 National Institute of Health Medline Plus Cancer Trial search 2748103/27/00
Score = 5 Meningioma Mommas An online support group for women with meningioma brain tumors. 2695902/27/03
Score = 3 Brain Tumor Biology Laboratory Oliver Boglers fascinating brain tumor research site. 2694803/27/00
Score = 3 Brain Tumors: Symptoms, Therapy and Future Cure By Patrick J. Kelly, MD, FACS NYU 2691403/27/00
Score = 3 Adult Ependymoma of The Brain - A Patient`s Story data-packed (verified true) written in plain english by a patient 2676809/04/04
Score = 3 Childhood Brain Tumor (PDQ®) Treatment - Patients Cancernet Information for patients on Childhood Brain Tumors 2673003/28/00
Score = 3 National Institute of Health Home Page Offers health information, grants and funding opportunities for research. 2671604/03/00
Score = 3 Boston Neurosurgical Foundation A multi-institutional neurosurgical team in Boston, Massachusetts serving Brigham and Women`s Hospital, Children`s Hospital, The Dana-Farber Cancer Institute and Harvard Medical School 2633804/02/00
Score = 3 The Brain Tumor Foundation of Canada Supports research into the cause and cure of brain tumors 2611903/27/00
Score = 3 It`s Just Benign website connecting benign brain tumor survivors 2606905/30/08
Score = 3 Seeking Peace: Brain Tumor Hospice Care Describes a list of end-stage "signs" to watch for to prepare for death from a brain tumor 2589411/30/06
Score = 3 Dr. Judah Folkman Article from Scientific American-Thalidomide, TNP470 etc Fighting Cancer by Attacking its Blood Supply-Angiogenesis Inhibitors 2538803/27/00
Score = 3 Kyla`s Page 24 year old fighting brain cancer family web site 2536310/17/02
Score = 3 Court and Shalane`s battle with brain cancer Step-by-step journey of 2 young adults fighting this devistateing illness. 2534208/14/06
Score = 3 Bereavement Support Listserv for survivors of brain tumor patients 2533703/28/00
Score = 3 Jim Kenzig`s Astrocytoma Links Links for Astrocytoma 2530403/28/00
Score = 3 Astrocytoma Types and Therapy from NYU Patrick J. Kelly, M.D., FACDS 2519503/28/00
Score = 3 Brainstem Tumor Mailing List- For Patients, Caregivers, Doctors and Researchers. Moderated by Jim Kenzig 2498903/28/00
Score = 3 The National Braintumor Foundation 800-934-CURE A not for profit organization that offers valuable resources for brain tumor patients and funds brain tumore research 2486503/27/00
Score = 3 NCI/PDQ Physician Statement: Childhood supratentorial primitive neuroectodermal and pineal tumors NCI PDQ 2468203/29/00
Score = 3 My Cancer News Cancer treatment search engine finds news of newest treatment...plus financial help for cancer patients and families. 2466801/25/03
Score = 3 British Columbia Cancer Agency . - Lots of good info; special segment on Alternative treatments 2465703/28/00
Score = 3 St. Jude Children`s Research Hospital Pediatric Brain Tumor Program 2435604/04/00
Score = 3 AboutKidsHealth Brain Tumour Resource Centre is a comprehensive, interactive, accessible resource for families of children with a brain tumour. 2432112/19/05
Score = 3 The Healing Exchange BRAIN TRUST Internet-based support groups for people who have brain tumors and other neurological abnormalities. 2425104/24/01
Score = 3 Boston Medical Center CyberKnife Boston Medical Center`s CyberKnife program offers state of the art, image-guided robotic radiosurgery with frameless technology 2420603/10/09
Score = 3 Corporate Angels Network Free Airfare This organization provides free air travel via corporate jet for ANY cancer patient who requires treatment at any nationally recognized treatment facility, without regard to their financial resources 2411203/27/00
Score = 3 Chordoma Support Group 2367709/26/04
Score = 3 Coalition for the Advancement of Medical Research (CAMR) Medical Research Advocates 2361503/05/04
Score = 3 UCLA Neuro-Surgery Program The Clinical Neuroscience Program at UCLA has consistently been ranked in the top 10 in the nation. 2359404/04/00
Score = 3 Center For Glioma Outcomes Research The GO Project is a voluntary, physician-directed project to improve outcomes for patients with glioma. 2349704/02/00
Score = 3 Locks of Love how people can donate hair for wigs for people losing hair to chemotherapy 2346210/18/01
Score = 3 Shared Experience Cancer Support Searchable listing of first-hand accounts by cancer patients and their loved ones. 2341604/03/00
Score = 3 The Brain Tumor Center at Duke in Durham, North Carolina dedicated entirely to the treatment and cure of brain and/or spinal cord tumors in children and adults 2332404/02/00
Score = 3 MedFriendly Free medical dictionary with easy to understand entries. 2325505/01/02
Score = 3 Angel Flight America Free / discounted air fare for brain tumor patients 2306505/06/02
Score = 3 Katie`s Kids for the Cure Exists to find a cure for brain tumors in children. The mission is to fund innovative and creative brain tumor research, both clinical, and basic science. 2297203/29/00
Score = 3 All Experts Experts from many fields volunteer thier time to answer questons - free of charge - on broad range of topics, like brain tumors, computers, law, love. If you have a computer problem, this is the fastest place to get an answer! 2292204/02/00
Score = 3 Remembering Rachel A memorial site for our daughter who lost her life to a glioblastoma multiforme brain tumour 2287204/03/05
Score = 3 Faith Emily Altbush This site is dedicated to the memory of our daughter who was taken from us by a diffuse pontine glioma. We have included a number of articles to help you understand what Faith endured, how much she meant to us and how we coped with her illness 2287001/06/02
Score = 3 Radiation Therapy for Pediatric Brain Tumors -Slide presentation 2285604/03/00
Score = 3 University of Pittsburgh Center For Image-Guided Surgery Largest Gamma Knife Experience in North America 2276603/29/00
Score = 3 Bill Beaton`s Tumor-Be-Gone Blog My Dad is GBM patient fighting to beat the odds. 2276306/09/06
Score = 3 Late Radiation Deafness in Children with Brain Stem Tumors Abstract 2270703/29/00
Score = 3 Mimi`s Story: Her Journey with GBM A memorial diary which chronicles my mother, Charlotte`s, journey with Glioblastoma Multiforme: onset of symptoms, diagnosis, medical options, hospice care, her passing and afterwards. One woman`s story through the eyes of her daughter. 2253003/13/08
Score = 3 Glivec Discussion Group A discussion group for persons interested in the new cancer treatment drug, Glivec. 2245503/07/01
Score = 3 Search Medline for Glioblastoma Multiforme Custom Search of Medline for Abstracts 2245103/28/00
Score = 3 Silvanlord (David Ellis) has a brain tumor. David Ellis, diagnosed with a pineal germinoma at 17, writes about his brain tumor. 2187410/23/02
Score = 3 BT Buddies A website for high grade brain tumour patients, their families, friends and caregivers living in the UK. 2138001/28/09
Score = 3 Ann Simon`s fight against glioblastoma A personal journey, including information about trials 2127105/15/06
Score = 3 Scott Vickroy`s survivor story Aggressive treatment over 9 months included high-dose chemo and a stem cell rescue 2119703/18/02
Score = 3 Analysis of a popular technique for estimating the location of the posterior fossa in children with Medulloblastoma Author: Joel W. Goldwein, M.D., David B. Solit 2118003/29/00
Score = 3 The American Cancer Society Cellular Phones and Risk of Brain Tumors This column is provided to help practitioners discuss potential environmental and workplace carcinogens, offering reassurance when patients` fears are unfounded and focusing legitimate concern when they are warran 2116510/24/02
Score = 3 Agydaganat.info - Sandor Czirjak Md, P.hD., D.Sc. Neurosureron homepage Hungarian and english language website: brain tumors, pituitary, epilepsy, surgery 2090304/30/07
Score = 3 Colorado Neurological Institute`s Center for Brain & Spinal Tumors CNI`s Brain Tumor Center has a comprehensive team approach 2090203/18/02
Score = 4 Brain TUmor Survivor Brain Tumour Survivor is a positive site of hope for those living with a brain tumour. A site dedicated to discussing survivorship, treatment options available now and those options on the horizon that show promise. 2078611/17/05
Score = 3 Search Medline for Chordoma Custom Search of Medline for Abstracts 2077003/28/00
Score = 3 About Acoustic Neuromas from the Brain Surgery Information Site 2058703/28/00
Score = 3 The ABC`s of Brain Tumors from their Biology to their Treatment A Primer of Brain Tumors by John R. Mangiardi, M.D. and Howard Kane Wm. 2053603/27/00
Score = 3 Shared Experience Cancer SUpport Knowledgebase Shared Experience is a non-profit, searchable collection of first-hand accounts by cancer patients and the people who love and care for them. It has one narrow focus: to share personal experiences of cancer survivors and provide a nexus for the recently diagnosed and others to contact one another. 2053112/05/00
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Disclaimer: These links and information are provided for information purposes only. The author of this page claims no responsibility for any of the content provided by these sites. The worldwide web can sometimes contain false or misleading information. Use this information at your own risk and discretion. Always obtain a qualified physicians advice before starting any treatment.
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This page is maintained by Jim Kenzig
In Memory of
Kristen Kenzig who died from a Pontine Brain Stem Glioma in Sept. 1997 at age 10.
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Jim Kenzig
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