Kristen Kenzig's Memorial

Information Links For Brain Tumors

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Rating Site Name DescriptionVisitedDate Added
Score = 4.46046046046 Childhood Brain Tumor Foundation 301-515-2900 Resources 1756803/29/00
Score = 3.81770833333 Make-A-Wish Grants wishes for terminally ill children. The worlds largest granter of wishes! 1529203/29/00
Score = 3.75528700906 Brain Surgery Information Center Dr. John Mangiardi`s excellent brain surgery information page 1969603/27/00
Score = 3.72786579683 Clinical Trials And Noteworthy Treatments For Brain Tumors Brain tumor information 2733903/26/00
Score = 3.59541984733 A Primer of Brain Tumors from the American Brain Tumor Association A Patient`s Reference Manual Note Adobe PDF Reader is needed. 1476603/27/00
Score = 3.56756756757 Corporate Angels Network Free Airfare This organization provides free air travel via corporate jet for ANY cancer patient who requires treatment at any nationally recognized treatment facility, without regard to their financial resources 1199803/27/00
Score = 3.48717948718 Locks of Love how people can donate hair for wigs for people losing hair to chemotherapy 1191210/18/01
Score = 3.43992248062 Decadron By Dr. Bruce Cohen Co-director of Brain Tumor Clinic at Cleveland Clinic What you need to know about this often prescribed steroid drug for reducing the swelling in brain tumors. 1220303/27/00
Score = 3.4137254902 CancerKids information, chat, hundreds of stories of childhood cancer 1791512/19/01
Score = 3.39756097561 The Musella Foundation For Brain Tumor Research & Information 516-295-4740 The organization that maintains Virtualtrials.com! 1218403/29/00
Score = 3.39429928741 The ABC`s of Brain Tumors from their Biology to their Treatment A Primer of Brain Tumors by John R. Mangiardi, M.D. and Howard Kane Wm. 849903/27/00
Score = 3.30555555556 Brain Tumors: Symptoms, Therapy and Future Cure By Patrick J. Kelly, MD, FACS NYU 1127803/27/00
Score = 3.30377358491 The National Braintumor Foundation 800-934-CURE A not for profit organization that offers valuable resources for brain tumor patients and funds brain tumore research 1183603/27/00
Score = 3.26685393258 Childhood Brain Tumor (PDQ®) Treatment - Patients Cancernet Information for patients on Childhood Brain Tumors 989403/28/00
Score = 3.26649076517 All Experts Experts from many fields volunteer thier time to answer questons - free of charge - on broad range of topics, like brain tumors, computers, law, love. If you have a computer problem, this is the fastest place to get an answer! 737104/02/00
Score = 3.25364431487 Shared Experience Cancer SUpport Knowledgebase Shared Experience is a non-profit, searchable collection of first-hand accounts by cancer patients and the people who love and care for them. It has one narrow focus: to share personal experiences of cancer survivors and provide a nexus for the recently diagnosed and others to contact one another. 817212/05/00
Score = 3.25274725275 Wigs for Kids wigs for kids, donations 872703/04/03
Score = 3.25190010858 New Approaches to Brain Tumor Therapy New Approaches to Brain Tumor Therapy 7395205/25/01
Score = 3.24210526316 Nevzdavame se! - We don`t give up Sdruzeni pro boj s nadory mozku - Community to fight brain tumors (in Czech language) 397803/03/08
Score = 3.24203821656 The Brain Tumor Society Home Page 800-770-TBTS Dedicated for providing resources to patients and families 735103/27/00
Score = 3.23188405797 Hospice Patients Alliance: Consumer Advocates providing complete information on hospice services, levels of care, standards of care and regulations right on our site, free assistance in resolving difficulties, publish: Family Guide to Hospice Care (more than 300 pages) 1288406/16/00
Score = 3.23006535948 NEW CANCER TREATMENTS, cures, research breakthroughs reported daily! Latest cancer news (by type) from 2500+ medical and research journals, FDA, and other sources 5603004/09/01
Score = 3.21968365554 Info for Patients Find Clinical Trials, Ask Our RN, Support Groups online every day, 3803206/27/00
Score = 3.21917808219 Adult Patient Resource Handbook of Brain Tumors From the Brain Tumor Foundation of Canada 917003/27/00
Score = 3.21107266436 The Central Brain Tumor Registry of the United States a not-for-profit corporation committed to providing a resource for gathering and disseminating current epidemiologic data on all primary brain tumors, benign and malignant 703603/27/00
Score = 3.20233463035 Cancerpage and TrialMatch Find Clinical Trials that you are elibible for; Ask Our RN any question; join the Support Groups in chat rooms online every day, 4979107/19/00
Score = 3.19245283019 Environmental Causes of Childhood Cancer and Remission Information Information on suspected causes of brain and neurological cancers, and the increase in cancers found in St. Lucie County, Florida 926404/02/00
Score = 3.19178082192 Going Home - help for the terminally ill. An audio CD-Cassette for the terminally ill and their 997106/10/05
Score = 3.1768115942 50 Helps for the Patient who can`t speak A communication aid for patients and caregivers by Teri Kenzig 1220203/29/00
Score = 3.17674418605 The Children`s Brain Tumor Foundation (212) 448-9494 Resources 800003/29/00
Score = 3.17204301075 Austin`s Miracle Fund Charity organization assisting children with brain cancer. 1158201/12/01
Score = 3.15702479339 The National Childrens Cancer Society 1-800-5-Family The N.C.C.S. provides direct financial assistance and emotional support to children with cancer and their families nationwide 877404/03/00
Score = 3.15458937198 Chordoma Support Group 787709/26/04
Score = 3.14351851852 Dr. Judah Folkman Article from Scientific American-Thalidomide, TNP470 etc Fighting Cancer by Attacking its Blood Supply-Angiogenesis Inhibitors 871703/27/00
Score = 3.14285714286 The Healing Exchange BRAIN TRUST Internet-based support groups for people who have brain tumors and other neurological abnormalities. 932004/24/01
Score = 3.12549019608 National Cancer Institute Clinical Trial Search Search NCI for cancer trial information 1213203/27/00
Score = 3.12173913043 Oncolinks Automated Listserv Subscriber Page Large list of Cancer Listservs 776603/27/00
Score = 3.12096774194 NCI PDQ on Adult Brain Tumor Patient Information 988303/29/00
Score = 3.12096774194 The Childrens Miracle Network Children`s Miracle Network is a non-profit organization dedicated to helping kids by raising funds and awareness for 170 affiliated children`s hospitals. 753703/29/00
Score = 3.12 The Brain Tumor Foundation of Canada Supports research into the cause and cure of brain tumors 1000503/27/00
Score = 3.11188811189 The new WHO Classification of Tumors affecting the Central Nervous System Comprehensive classification of neoplasms affecting the central nervous system 645803/27/00
Score = 3.10909090909 The National Information Center for Children and Youth with Disabilities Provides information on disabilities and disability-related issues for families, educators, and other professionals. Our special focus is children and youth (birth to age 22) 910503/29/00
Score = 3.10837438424 O.S.C.A.R (UK) OSCAR provides an ongoing support to the child and family from the moment they walk in to the hospital through to hopefully many years on. Initial support is in the form of providing knowledge, information and support at a most traumatic time and then ongoing support through the out patients treatments and long term guidance and assistance with the many consequences of that initial treatment. 644604/23/02
Score = 3.10774410774 A simple explanation of gliomas by Dr Kelly NYU If you took high school sophomore biology ... you can understand brain tumors. 2162110/20/03
Score = 3.10227272727 MedFriendly Free medical dictionary with easy to understand entries. 760005/01/02
Score = 3.10223642173 Department of Neurosurgery Bowman Gray School of Medicine Good resource site 1043103/27/00
Score = 3.10034602076 The Infography about Malignant Glioma Resources for brain tumors 1628204/30/04
Score = 3.09252669039 NCI Cancernet Physicians Data Query (PDQ) NCI database that contains the latest information about cancer treatment, screening, prevention, genetics, and supportive care, plus clinical trials. 933003/29/00
Score = 3.09137055838 Easy to Swallow A website providing Recipes for People with Chewing and Swallowing Problems, due to ill health, dental work or advancing age. 569004/10/05
Score = 3.08938547486 The American Cancer Society Cellular Phones and Risk of Brain Tumors This column is provided to help practitioners discuss potential environmental and workplace carcinogens, offering reassurance when patients` fears are unfounded and focusing legitimate concern when they are warran 794010/24/02
Score = 3.08928571429 Brain Tumor Dictionary Definitions From Virtualtrials.com 550103/27/00
Score = 3.08762886598 HealthWindows For Kids A site where kids (and adults) can learn about the body. Not brain tumor specific, but there are very good articles about the parts of the brain. 598204/02/00
Score = 3.0821529745 Mauo Clinic Brain Tumor Center Brain tumor center at the Mayo Clinic in MN, FL and AZ 3548406/27/06
Score = 3.08133971292 Brain Tumour Australia Inc. An Australian National not-for-profit organisation providing resources, education & support 509602/09/06
Score = 3.07843137255 NIH Cancerlit Search for Brain Tumor Abstracts from brain tumor related articles from last 6 month - scroll down to the 885103/29/00
Score = 3.0752688172 Brain Tumor Biology Laboratory Oliver Boglers fascinating brain tumor research site. 866203/27/00
Score = 3.06785714286 Coma Recovery Association A non-profit organization founded in 1980 by the family members of comatose patients. We offer mutual aid and support, support group meetings, general information, referrals and advocacy. 997708/19/00
Score = 3.06770833333 Chemocare.com Scott Hamilton Cancer Survivors site provided by the Cleveland Clinic that has a wealth of information for patients on Chemotherapy 654507/26/03
Score = 3.06648199446 ULCA Neurosurgery Brain Tumor Program ULCA Neurosurgery Brain Tumor Program 4255601/12/06
Score = 3.06637168142 Addresses of Childrens Resource Organizations Resources for childrens cancer 695103/29/00
Score = 3.0612244898 The Partnership for Prescription Assistance This site was designed to help you find patient assistance programs and free or discounted drugs for which you may qualify. 578904/09/04
Score = 3.06010928962 Coping With Mild Brain Injury A book about coping 436804/02/00
Score = 3.05970149254 Picture Helps for Children who can`t read or speak A communication aid for patients and caregivers by Jim Kenzig. . Hint: Change your printer orientation setting to Landscape mode for this to print out correctly 1196203/29/00
Score = 3.05288461538 Neuropsychology Central Neuropsychology Frequently Asked Questions, Forum and Links 564004/03/00
Score = 3.04624277457 Clinical Trials HQ Clinical Trials HQ 4097402/08/06
Score = 3.04433497537 U.S. Department of Education/Office for Civil Rights Where to find out what rights you have as a patient in the United States 566903/27/00
Score = 3.03902439024 National Institute of Health Medline Plus Cancer Trial search 889603/27/00
Score = 3.03676470588 Bereavement Store Bereavement, Greif, Merrorial Framed Products 434204/27/04
Score = 3.03463203463 Katie`s Kids for the Cure Exists to find a cure for brain tumors in children. The mission is to fund innovative and creative brain tumor research, both clinical, and basic science. 747803/29/00
Score = 3.03436426117 British Columbia Cancer Agency . - Lots of good info; special segment on Alternative treatments 841703/28/00
Score = 3.0303030303 NeuroSource The `Global Directory` of Neuroscience! 416504/03/00
Score = 3.02880658436 The James Crofts Hope Foundation Inc. Australian Site. The Foundation is committed to providing assistance for families of patients with brain tumours, and also to the advancement of the treatment and research of these conditions. 1026207/26/03
Score = 3.02762430939 Oncolink Search University of Pennsylvania 567904/03/00
Score = 3.02684563758 MedWeb: Neurology Neurology links from Emory University 280604/03/00
Score = 3.02212389381 Ependymoma Group Ependymoma Group Website 996808/08/06
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Disclaimer: These links and information are provided for information purposes only. The author of this page claims no responsibility for any of the content provided by these sites. The worldwide web can sometimes contain false or misleading information. Use this information at your own risk and discretion. Always obtain a qualified physicians advice before starting any treatment.
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This page is maintained by Jim Kenzig
In Memory of
Kristen Kenzig who died from a Pontine Brain Stem Glioma in Sept. 1997 at age 10.
© 2000, 1999, 1998, 1997 Copyright All Rights Reserved.
Donations to assist in the maintenance of this website may be sent to:
Jim Kenzig
PO Box 111223
Cleveland, Ohio 44111-1223