Brain Tumor Guide
Braintumor Website

 

New 8th Edition added on 10/30/2013

  Brain tumor guide for the newly diagnosed!

Brain Tumor Guide For The Newly Diagnosed

Table Of Contents

  • INTRODUCTION BY HENRY S. FRIEDMAN, MD vi
  • SOME NOTES ABOUT THIS EDITION viii
  • CHAPTER 1: WHERE, WHEN, HOW, AND WHY ME? 1
    • Starting now 2
    • How to use this guide 4
    • Survivor story #1 6
  • CHAPTER 2: FROM DAY ONE, A PLACE FOR EVERYTHING 7
    • Tools to help you get organized 7
    • Location, location, location 9
    • A personal diary 9
    • Legal papers 10
    • Advance directives and durable power of attorney 10
    • Phone numbers 11
    • Second "expert" opinions 11
    • The role of caregivers and loved ones 12
    • Mind, body, and soul: faith in healing and emotional wellness 14
    • Impairments and strategies for coping 16
    • Survivor story #2 20
  • CHAPTER 3: UNDERSTANDING BRAIN TUMORS 21
    • What is a glioma? 21
    • What does "tumor grade" mean? 22
    • How long has the tumor been there? 23
    • Are brain tumors the same as brain cancer? 23
    • Can brain tumors be removed surgically? 24
    • What are the survival statistics for patients with brain tumors? 25
    • Survivor story #3 28
  • CHAPTER 4: QUESTIONS TO ASK, AND A PRIMER ABOUT BRAIN SCANS 29
    • What questions should I ask my doctor(s)? 31
    • All about brain scans 31
    • Survivor story #4 35
  • CHAPTER 5: TREATMENTS OF BRAIN TUMORS 37
    • Clinical trials 40
    • Neurosurgery 43
    • Radiation therapy 44
    • Chemotherapy 46
    • Long-term side effects 50
    • The Brain Tumor Virtual Trial 51
    • Survivor story #5 53
  • CHAPTER 6: ALTERNATIVE AND COMPLEMENTARY TREATMENTS 55
    • The mainstream path of treatment development 55
    • How alternative treatments are developed 57
    • Survivor story #6 62
  • CHAPTER 7: COMMON MEDICINES FOR TREATING SYMPTOMS 63
    • Medications for pain relief 65
    • Medications for swelling 65
    • Medications for reducing seizures 67
    • Medications for reducing nausea 68
    • Medications for improving mood 69
    • Medications for reducing the formation of blood clots 70
    • Survivor story #7 72
  • CHAPTER 8: SEX AND FERTILITY 73
    • Effects of treatment and medication 73
    • Birth control 74
    • Sex, surgery, and brain tumor treatment 74
    • Fertility 75
    • Survivor story #8 77
  • CHAPTER 9: "REAL WORLD" AND ONLINE SUPPORT GROUPS 79
    • "Real world" support groups 79
    • Online support groups 80
    • Survivor story #9 83
  • CHAPTER 10: INSURANCE MANAGEMENT AND FINANCIAL ASSISTANCE 85
    • Insurance under the Patient Protection and Affordable Care Act 85
    • Understanding your insurance 86
    • Financial assistance 89
    • Survivor story #10 92
  • AFTERWORD BY AL MUSELLA, DPM 93
  • APPENDIX: THE VIRTUALTRIALS.COM WEBSITE OF THE MUSELLA FOUNDATION 95
  • ACKNOWLEDGMENTS 98
  • NOTES 100



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