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Websites listed in the ninth edition of Brain Tumors Guide for the Newly Diagnosed


Some notes about this edition


Dictionary of cancer terms


Chapter 1: Where, when, how, and why me?


Survivor stories


Chapter 2: From day one, a place for everything


Major brain tumor treatment centers


Consultation with neuro-oncology branch of the National Cancer Institute


Consultation with the division of neuropathology at Johns Hopkins University Hospital


Support for caregivers


Cancer Care


Cancer Compass,0,122.htm


Caregiver Hope




Family Caregiver Alliance National Center on Caregiving


National Hospice & Palliative Care Organization


Lotsa Helping Hands


National Family Caregivers Association




Strength for Caring


Today's Caregiver


Well Spouse Association


Center to Advance Palliative Care for a directory of palliative care resources


Prayer list at the website of the Musella Foundation


Information about hospice care


The Hospice Foundation of America


Hospice Net


Seeking Peace: Brain Tumor Hospice Care, a brain-tumor help site for hospice care


Chapter 3: Understanding brain tumors


National Cancer Institute information about specific types of brain tumors


Essay by Stephen J. Gould, "The Median Isn't the Message"


Brain tumor survival statistics from the Central Brain Tumor Registry of the United States


Chapter 4: Your medical team, questions to ask, and brain scans


Breaking news at the website of the Musella Foundation


Chapter 5: Treatments of brain tumors


Standard-of-care treatment for high grade glioma (the "Stupp" protocol)


Finding clinical trials


The "Find a treatment" tab at the website of the Musella Foundation


The clinical trial search engine at the National Cancer Institute


The registry of clinical trials, run by the National Institutes of Health


The video library at the website of the Musella Foundation


Plain English explanations of the latest brain tumor treatments in general use at the website of the Musella Foundation


Help paying for medications




The copay assistance program of the Musella Foundation


Sections about key brain tumor treatments at the website of the Musella Foundation


Brain tumor vaccines


Gliadel wafer


Novocure NovoTTF-100A System




Toca 511 & Toca FC


The Brain Tumor Virtual Trial at the website of the Musella Foundation


The writings of glioblastoma multiforme survivor Ben Williams at the website of the Musella Foundation


Chapter 7: Common medicines for treating symptoms


The drug information site of National Institutes of Health, Medline Plus


Chapter 8: Sex and fertility


Help with finding fertility experts or physicians/therapists dealing with sexual problems


The American Medical Association


The American Society for Reproductive Medicine


The American Association of Sex Educators, Counselors, and Therapists


Chapter 9: "Real world" and online support groups


Help with finding "real world" support groups


American Brain Tumor Association


Cancer Care


The National Brain Tumor Society


"Real world" support groups at the website of the Musella Foundation


Online support groups at the website of the Musella Foundation


Chapter 10: Insurance management and financial assistance


The American Brain Tumor Association primer about the Affordable Care Act


The American Society of Oncology website for patients about financial considerations related to cancer care


The co-pay assistance program of the Musella Foundation


The drug discount card at the website of the Musella Foundation


Organizations that can provide financial assistance


American Brain Tumor Association


Angel Flight Travel Assistance


Cancer Care


Caring for Cancer


Drug Assistance Programs from Pharmaceutical Companies


Medicare Rights Center


Medicare Prescription Drug Program


Miles for Hope Travel Assistance


Mission for Maureen Travel Assistance




Patient Advocate Foundation


Supplemental Security Income (SSI) & Social Security Disability Insurance



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