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Note: the Musella Foundation For Brain Tumor Research And Information runs this website. For information about our organization, click HERE. We have no relation to the following organizations. They are listed here because they are important resources and we encourage you to contact them!

New: We added a new section for Young Adult Cancer Survivor Resources.. Scroll down to the bottom of this page to see them!

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Grey Ribbon Crusade

The Grey Ribbon Crusade is a coalition of brain tumor charities acting as a United Force Against Brain Tumors (UFAB). We are one of the founding members.
The following brain tumor organizations are members:

Location	Organization Name
Mamfe,   Cameroon	The Enoh Nkongho Brain Foundation 9-7-2-5-4-2-8-4-6-8-0-9 Send Email
Thornhill, Ontario  Canada	Tali's Fund 905-731-2324 Send Email     http://www.taldoron.com
Leipzig,   Germany	German Brain Tumour Association 0049 341.590 93 96 Send Email     http://www.hirntumorhilfe.org
Milan,   Italy	AITC - Associazione Italiana Tumori Cerebrali ONLUS 0039-347-830-6197 Send Email     http://www.tumoricerebrali.it
Uckfield, East Sussex  UK	Brain Tumour (BT) Buddies 05601 751226 Send Email     http://www.btbuddies.org.uk
Cheadle Hulme, Cheshire  United Kingdom	Astro Fund 0161 221 1320 Send Email     http://www.astrofund.org.uk
Englewood, CO  United States	Glenn Garcelon Foundation 503-969-7651 Send Email     http://glenngarcelonfoundation.org
Oneonta, Alabama	Glenn Alan Miller Memorial Fund 205-274-9958 Send Email
Scottsdale, AZ	Students Supporting Brain Tumor Research 1-888-SSBTR-AZ Send Email     http://www.SSBTR.org
Sedona, AZ	Oligo Fund of Musella Foundation 928-203-4213 Send Email     http://virtualtrials.com/oligofund/
Davis, CA	Coalition for Children's Brain Tumor Research 530-400-7087 Send Email
Encino, CA	Whole Child LA and Whole Child Foundation 310-908-7470 Send Email     http://www.wholechildla.org
Granada Hills, CA	We Can, Pediatric Brain Tumor Network 3107393433 Send Email     http://www.wecan.cc
Napa, CA	The Tug McGraw Foundation 7072551884 Send Email     http://www.tugmcgraw.org
San Diego, CA	San Diego Brain Tumor Foundation 619-515-9908 Send Email     http://www.sdbtf.org
Santa Monica, CA	UCLA Department of Neurosurgery (310) 825-5111 Send Email     http://www.neurosurgery.ucla.edu
US Air Force Academy, CO	Rachael's Ribbons of Hope Foundation 301-237-6186 Send Email     http://www.rachaelsribbonsofhope.org
Storrs, CT	University of Connecticut 860-518-0606 Send Email     http://www.math.uconn.edu/~hernandez
Washington, DC, District of Columbia	Accelerate Brain Cancer Cure 202-467-2051 Send Email     http://www.abc2.org
Clearwater, Fl	Miles For Hope 727-647-6548 Send Email     http://MilesForHope.org
Coral Springs, FL	Florida Brain Tumor Association 954-755-4307 Send Email     http://www.floridabraintumor.com/
Ponte Vedra Beach, FL	Nicki Leach Foundation 904-280-8916 Send Email     http://www.nickileach.org
Viera, FL	Just One More Day for Love, Hope & a Cure 321-698-8538 Send Email     http://www.JustOneMoreDay.org
Canton, Ga	Bend Your Knees, Inc. 4042711360 Send Email     http://www.BendYourKnees.org
Douglasville, GA	The Charles Warren Brain Tumor Awareness Foundation, Inc. 770-942-0639 Send Email     https://www.facebook.com/The-Charles-Warren-Brain-Tumor-Awareness-Foundation-Inc-20906712578793
Des Moines, IA	The Michael Overall Benefit Fund 409-790-4247 Send Email     http://www.michaeloverall.org/
Chicago, IL	Imerman Angels 877.274.5529 Send Email     http://www.imermanangels.org
Chicago, IL	Michael Matters Foundation 312-372-1921 Send Email     http://www.michaelmatters.org
Des Plaines, Il	LAAF - Lori Arquilla Andersen Foundation 904-334-0124 / 847-561-1199 Send Email     http://www.laafinc.org
Lake Forest, IL	Benny's World 847-612-5567 Send Email     http://www.bennysworld.org
Lake in the Hills, IL	Ryan Lamantia Foundation 847-669-0481 Send Email     http://www.ryanlf.org
West Chicago, IL	PA/PMA Research Fund at Johns Hopkins 630-293-0961 Send Email
Benton, Kentucky	Gunner's Magic Train Pediatric Cancer Foundation 270-527-6500 Send Email     http://www.gunnersmagictrain.org
Overland Park, KS	Epidermoid Brain Tumor Society 913-261-9662 Send Email     http://epidermoidbraintumorsociety.org
Newton, MA	National Brain Tumor Society 617 924 9997 Send Email     http://www.braintumor.org
Baltimore, MD	Keep Punching 410-913-3347 Send Email     http://keeppunching.org
Germantown, MD	Childhood Brain Tumor Foundation 877-217-4166 Send Email     http://www.childhoodbraintumor.org
Gladstone, MI	Michigan State University 906 280-1416 Send Email
Holland, MI	Unlocking Brain Tumors, Inc (616) 335-9050 Send Email     http://unlockingbraintumors.org
Jackson, Mi	Another Day Another Memory (A.D.A.M.) 5179149556 Send Email     http://www.adamupdate.com
Kansas City, MI	Head for the Cure Foundation 816-218-2890 Send Email     http://www.headforthecure.org
Midland, MI	Walk For Kate 989-600-1745 Send Email     http://www.walkforkate.org
Rochester, MN	Brains Together For a Cure 507-266-5280 Send Email     http://www.brainstogetherforacure.org
Carrboro, NC	UNC Chapel Hill 4044221113 Send Email
Charlotte, NC	Brain Tumor Fund for the Carolinas 704-635-8643 Send Email     https://www.fftc.org/SSLPage.aspx?pid=798
Raleigh Durham, NC	Preston Robert Tisch Brain Tumor Center Send Email     http://www.cancer.duke.edu/btc/
Omaha, NE	Leap-for-a-Cure 402-333-9370 Send Email     http://www.leapforacure.org
Martinsville, NJ	Central New Jersey Brain Tumor Support Group 908-685-0917 Send Email     http://cnjbt.org
Cream Ridge, NJ	Gray Matters Brain Cancer Foundation 609-529-1363 Send Email     http://www.gmbcf.org
Oceanport, NJ	The Kortney Rose Foundation (732)222-1491 Send Email     http://www.thekortneyrosefoundation.org
Robbinsville, NJ	Thea's Star of Hope 609-964-1353 Send Email     http://www.theasstarofhope.org
Roseland, NJ	Peter A Bednarski Fund for Brain Tumor Research Inc 973-403-8306 Send Email
Swedesboro, NJ	Matthew's Miles 856-467-9426 Send Email     http://www.matthewsmiles.org
Wall, NJ	Monmouth and Ocean County Brain tumor Support Group 609-914-1590 Send Email     http://www.njbt.org
Buffalo, NY	Roswell Park Cancer Institute 716-845-8850 Send Email     http://www.roswellpark.org
Chappaqua, NY	A Kids' Brain Tumor Cure 914-762-3494 Send Email     http://www.akidsbraintumorcure.org
Hewlett, NY	Musella Foundation For Brain Tumor Research & Information, Inc 5162954740 Send Email     http://virtualtrials.com
New York, NY	Children's Brain Tumor Foundation 866-228-4673 Send Email     http://www.cbtf.org
New York, NY	Cristian Rivera Foundation 212-779-2222 Send Email     http://www.cristianriverafoundation.org
New York, NY	Kamen Brain Tumor Foundation 212-426-6895 Send Email     http://kamenbraintumorfoundation.org
New York, NY	Voices Against Brain Cancer 516 633 0800 Send Email     http://www.voicesagainstbraincancer.org
Warwick, ny	Michael A. DiCarlo Brain Tumor Foundation 845-981-7020 Send Email     http://
Avon Lake, OH	Smiles For Sophie Forever 440 930-5091 Send Email     http://www.smilesforsophieforever.org/
Boardman, OH	Tommy Detesco Fund for Adolescents and Young Adults 330-729-9228 Send Email     http://www.tommydetescofund.com
Cincinnati, OH	Cure Starts Now 513-478-8990 Send Email     http://www.thecurestartsnow.org
Columbus, OH	Ohio State University Medical Center 6142922177 Send Email     http://medicalcenter.osu.edu/
Lancaster, OH	Kevin Mullin Memorial Fund for Brain Tumor Research 740-756-7987 Send Email     http://www.lemonhead.org
London, OH	Rockin' on the Run Send Email     http://www.rockinontherun.org
Parma, OH	Michael G. Belz Foundation 440-263-2688 Send Email     http://mgbf.org
South Euclid, OH	Mission4Maureen 440- 840-6497 Send Email     http://www.mission4maureen.org
West Chester, OH	Lifestream for Kids 513-787-7084 Send Email     http://www.lifestreamforkids.com
Oklahoma City, OK	Oklahoma Brain Tumor Foundation 405-843-4673 Send Email     http://www.okbtf.org
Ambler, PA	Wylie's Day Foundation 215.643.2181 Send Email     http://www.wyliesday.org
Butler, PA	Denise's People 724-482-2984 Send Email     http://www.denisespeople.org
Easton, PA	Lauren's First and Goal Foundation 610-250-6981 Send Email     http://www.laurensfirstandgoal.org
Lafayette Hill, PA	Kyle Daniel Kerpan Foundation 215-402-9371 Send Email     http://www.caringbridge.org/pa/kyledkerpan
Oakdale, PA	Samuel J Foundation 724-693-9901 Send Email     http://www.stpaulspgh.org/samuel-j-foundation/
Philadelphia, PA	University of Pennsylvania Department of Neurosurgery 215-615-4379 Send Email     http://www.uphs.upenn.edu/neurosurgery/
Pittsburgh, PA	Allegheny Brain Tumor Center 412-359-6715 Send Email
richboro, PA	Cure4Chad.org 267 9399742 Send Email     http://cure4chad.org
Scranton, PA	Aimee's Army 570-687-4480 Send Email     http://www.aimeesarmy.com
Upland , PA	Crozer-Chester Foundation 610-447-6122 Send Email     http://give.crozer.org
Providence, RI	Rhode Island Brain & Spine Tumor Foundation 401-272-4177 Send Email     http://www.ribstf.org
Marietta, SC	The Brain Tumor Awareness Organization 864-836-4609 Send Email     http://www.braintumorawareness.org
Dyersburg, Tennessee	Brain Tumor Group Of Tennessee 731-334-9930 Send Email
Kyle, Texas	Greg's Mission 612-437-5903 Send Email     http://www.gregsmission.org
Carrollton, TX	The Nick Gonzales Foundation for Brain Tumor Research 469-438-7001 Send Email     http://thenickgonzalesfoundation.org/
Dallas, TX	Team Underwood Foundation 214-404-9961 Send Email     http://tufoncancer.org
Houston, TX	Dr. Marnie Rose Foundation 713-993-9288 Send Email     http://www.RunfortheRose.com
Houston, TX	The Brain Tumor Trials Collaborative (BTTC) 713-792-2078 Send Email     http://www.bttconline.org
Porter, TX	Children's Brain Tumor Research Foundation 832-723-2605 Send Email     http://www.cbtrf.org
Ashburn, VA	The Brad Kaminsky Foundation for Brain Tumor Research 7037299897 Send Email     http://tbkf.org
Ashland, VA	Brown Bag For A Cure (804) 296-4590 Send Email     http://brownbagforacure.org
Crozet, VA	Lou Beeler Foundation 434-823-2848 Send Email     http://www.beelerfoundation.org
Glen Allen, VA	Brain Tumor Resource And Information Network 1-800-900-6195 code 48 Send Email     http://www.brainsite.org
Vienna, VA	The Brian Bedell 2-Young Foundation 302-737-5341 Send Email     http://www.2yf.org
Rutland, VT	Gayle SHeldon Memorial Foundation for Brain Cancer, Inc. 802-770-9813 Send Email     http://www.gaylesheldongbm.com
Maple Valley, WA	The Chris Elliott Fund 253 266 0009 Send Email     http://www.chriselliottfund.org
Ballengee, WV	Raleigh General Hospital 304-660-5969 Send Email
Casper, WY	Brain Injury Association of Wyoming 307-473-1767 Send Email     http://www.biausa.org/Wyoming

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Other Brain Tumor Organizations

International Brain Tumour Alliance (IBTA) - The International Brain Tumour Alliance is a coalition of the support, advocacy and information groups for brain tumour patients and caregivers in different countries and also includes researchers, scientists, clinicians and allied healthcare professionals who work in the field of brain tumours. Website: www.theibta.org Email: chair@theibta.org or kathy@theibta.org Telephone: (44) (0) 1737 813872 (UK) or (61) (2) 6258 3912 (Australia)

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CERN Foundation Collaborative Ependymoma Research Network: Ependymoma research and information. See video

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The Tug McGraw Foundation The mission of the Foundation is to support research that will improve the quality of life for brain cancer patients and their families.

The Tug McGraw Foundation was established to raise funds for pioneering brain cancer research, increase public awareness of the disease, and support college students who exemplify leadership and Tug's inspiring "Ya Gotta Believe" spirit.

Tug McGraw Foundation
1303 Jefferson Street, Suite 100B, Napa, CA 94559
Phone: (707) 255-1884
Fax: (707) 255-1926
Email: info@tugmcgraw.org
Website: www.tugmcgraw.org

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HOPE With Support was established to give extra support to those whose lives are affected by brain tumors, including survivors, caregivers and their families and friends.

This organization is dedicated to providing brain tumor awareness through outreach, encouragement, education, and hope for brain tumor survivors, families and caregivers through support groups, seminars, online support, and raising funds for research to find the cure for brain tumors.

• To "Help others by providing Encouragement" to persons diagnosed with brain tumors.
• To help brain tumor survivors, their families and their caregivers by providing information, education and support.
• To promote Quality of Life for the victims of the disease.
• To promote public awareness of this disease through speaking engagements, and by sharing with others.
• To advocate for brain tumor awareness among the public.

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DIPG Registry and information on Diffuse Intrinsic Pontine Gliomas

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Children's Oncology Group

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National Brain Tumor Society 800-934-2873

The National Brain Tumor Society is a nationwide non-profit organization serving people whose lives are affected by brain tumors. We are dedicated to promoting a cure for brain tumors, improving the quality of life and giving hope to the brain tumor community by funding meaningful research and providing patient resources, timely information and education.

NBTF has awarded over $5 million in brain tumor research since our founding in 1981 and is the leading provider of services to brain tumor patients and their families. Services include a toll-free Patient Information Line (800.934.2873), comprehensive website (www.braintumor.org), Essential Guide to Brain Tumors and other printed publications, caregiver workshops, medical information nurse, patient and caregiver support network , support groups across the country, Search newsletter, monthly e-newsletter, teleconferences, conferences, financial assistance, resources in Spanish, Angel Adventure fundraising walks and community days, Racing Ahead for NBTF program and more. All of our programs are free.

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Brain Tumor Society, founded in 1989, exists to find a cure for brain tumors. BTS is committed to research, education and support. BTS strives to improve the quality of life for all those affected by a brain tumor diagnosis. BTS provides psychosocial support through telephone counseling, assistance in finding and accessing local support groups or services, informational materials, and educational events for patients, survivors and their families.

BTS has funded over $9 million since the inception of its Research Grant Program, including $1.8 million in 2005 alone. The Research Grant Program funds vital science research projects undertaken by pioneers in science and research, who bring us closer to a cure for brain tumors. BTS believes that there is hope, and there will be a cure.

Sarah Gupta, LICSW
Director of Support Services
Brain Tumor Society
124 Watertown Street, Suite 3H
Watertown, MA 02472
Toll Free: 800.770.8287 ext 25
Web: http://www.tbts.org

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American Brain Tumor Association Phone: 800-886-2282

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Bryan’s Dream Foundation 908-693-0649
Bryan's Dream Foundation is a non-profit 501(c)(3) organization established in memory of Bryan Timothy Opremcak. The mission is to make life a little brighter for children with brain tumors, and other pediatric cancers, and their families by providing financial assistance, information & support, to promote pediatric brain tumor awareness and to provide funding to pediatric brain tumor research.

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The Brain Tumour Foundation of Canada Phone: 519-642-7755 or 1-800-265-5106

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The Childhood Brain Tumor Foundation Phone: 877-217-4166

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The Children's Brain Tumor Foundation (CBTF) Phone: 866-228-HOPE (4673)

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The Central Brain Tumor Registry of the United States (CBTRUS) Phone: 773-579-0021

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The Children`s Tumor Foundation: Ending Neurofibromatosis Through Research
formerly known as the National Neurofibromatosis Foundation
95 Pine Street 16th Floor
New York, NY 10005
Phone: 800-323-7938 or 212-344-6633
Fax: 212-747-0004
Email: info@ctf.org

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Brain Tumour U.K. , founded in 1997, is a national charity, and our aims are:

• to increase awareness and knowledge of brain tumours
• to improve access to information and support for brain tumour patients
• to advocate for enhanced treatment and care
• to raise significant funds for research projects

email:enquiries@braintumourukorg.uk

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The National Association for Proton Therapy

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Pediatric Cancer Foundation of the Lehigh Valley

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The Gerry& Nancy Pencer Brain Trust

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The Preuss Foundation

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The Central NJ Brain Tumor Support Group

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Southeastern Brain Tumor Foundation

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Jeffrey Thomas Hayden Foundation The Jeffrey Thomas Hayden Foundation was created to increase Awareness about Pediatric Brain Tumors and provide Education and Support to affected families. To raise money to fund worthy causes; such as Academic Scholarships, Research, and assist other support organizations with their efforts, with a focus on finding a balance between the best available treatments with the best quality of life.

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Lauren's First and Goal Foundation created to raise funds to support pediatric brain tumor research, support local pediatric cancer services, provide financial assistance to families living with a pediatric cancer diagnosis and to raise public awareness regarding pediatric brain tumors.

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The Charles Warren Brain Tumor Awareness Foundation, Inc. is a 501(c)3 with the purpose of promoting brain tumor awareness and raising funds for research and development of a cure.

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Sydney Neuro Oncology Group is a charitable organisation in Australia NSW who deal with brain tumour patients both in research and support.

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Samantha Dickson Brain Tumour Trust (SDBTT) The largest funder of laboratory based brain tumour research in the UK. Offers a vital support link for patients diagnosed with a brain tumour and their families or carers. Tel: (UK) 0845 130 9733 Email: patientinfo@sdbtt.co.uk

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Astro Brain Tumour Fund www.astrofund.org.uk
Astro Brain Tumour Fund raises funds to support low-grade glioma research. They are also working closely with charity Matthew's Friends providing funding and support for LGG patients wishing to undertake ketogenic therapy. The charity also offers information and support via its website and closed Facebook page which has over 300 members.
Contact

• Christine for information info@astrofund.org.uk
• Mary for fundraising & donations treasurer@astrofund.org.uk
• Linda for support lindatrustee@astrofund.org.uk

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Wish Granting Organizations

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Children - Make -A -Wish Foundation

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Adults - Fairy god mother.org

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COMPASSION PARTNERS- Provides FREE theme park tickets in Florida, for you and your entire family if you have a "terminal" or "life threatening illness" verified by your doctor. The number to call is 407-396-1114, the lady you need to talk to is Donna.

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Other Organizations that offer help

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WWW.NEEDYMEDS.ORG The most complete database of patient assistance programs also offers the NeedyMeds Drug Discount Card, which can be printed at no charge and requires no registration.

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CANCER CARE: CancerCare provides free professional support ervices -- including counseling, education, financial assistance, and practical help. These services are all provided for free by trained oncology social workers. If you need any information about CancerCare's services and/or would like to speak with an oncology social worker about your situation, please contact us at 1-800-813-HOPE (4673)."

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CANCER FUND OF AMERICA- Provides all FREE basic living needs such as shampoo, candy, toys, clothes, crutches, advil, and many, many more items. www.cfoa.org, can also be reached at 1-800-578-5284 or mail to customerservice@cfoa.org.

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BELLSOUTH- also offers approximately $12.00 off your phone bill through the "Lifeline" program if you are on medicaid.

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THE TIM AND TOM GULLIKSON SCHOLARSHIP PROGRAM- This foundation will give scholarships to children whose parents who have had or has brain tumors. Just type in Tim and Tom Gullikson Foundation.

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THE GEORGE BARTOL SCHOLARSHIP FOUNDATION- Gives scholarships to persons whose parents have had or has aa brain tumor or tumors. Just type in The George Bartol Scholarship Fund.

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WWW.CROSSINGTHEFINISHLINE.ORG-This org. will give a FREE 1 week all expense paid vacation tto those with a diagnosis of cancer, and their caregiver. Needs verification by your doctor. Children allowed if feasible. Open to those ONLY IN THE STATES OF PA, NJ, and DE. Must be between the ages of 18-50 years of age.

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WWW.ANGELFLIGHT.ORG- Angel Flight West provides FREE transportation to medical treatment for those who cannot afford public transportation, or who cannot tolerate it for health reasons. Angel Flight also flies missions in response to other compelling needs. Angel Flight West accepts requests from individuals or health care professionals such as social workers and physicians. They have regional flight programs accross the country, you can call one of these organizations that can direct you to the appropriate branch. You can also call Angel Flight West toll free at: 1-888-4-AN-ANGEL. or 888-426-2643

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MIRACLE FLIGHTS FOR KIDS (NOTE: not just for kids!) http://www.miracleflights.org/ Flies children (also some adults) who are struggling with serious cancers and debilitating diseases to specialized medical treatment centers across the United States. Any child needing medical treatment or second opinion not available in their area is eligible to apply for a miracle mission. These are airline flights, better for some who would find it difficult to travel on the smaller private planes offered by Angel Flights.

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AMERICAN CANCER SOCIETY http://www.cancer.org/ A nationwide, community-based voluntary health organization with more than 3,400 local offices. Provide a wide range of emotional and practical support for patients, families, caregivers, and communities. Trained cancer information specialists are available 24 hours a day, seven days a week to answer questions about cancer and link callers with resources. Call 800-ACS-2345 (1-866-228-4327 for TTY). Callers who speak languages other than English and Spanish can also be assisted. Note they can help you get discounted hotel rates and ground transportation when traveling for "second opinion" consultations or treatment.

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THE PATIENT ADVOCATE FOUNDATION http://www.copays.org/ Co-Pay Relief program for people with type 3 and 4, i.e. malignant, brain tumors. They will cover your prescription co-pays if you qualify for their services! Toll Free 1-866-512-3861, email:

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http://www.patientaccessnetwork.org/ Patient Access Network - offers help to people who can't afford treatment!

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Mercy Medical Airlift: 888-675-1405
ASC Air Miles (this is all mileage that has been donated) 1-800-227-2345
-Will help patient and ONE care giver with air ticket (although the caregiver's ticket is NOT guaranteed)
-Prefer 3 weeks notice
-May be able to help with co-payments for treatment, please request
-No restrictions as to how many times patients need to travel can go, only limitations on caregiver
-$10 security fee, baggage fee is applicable, no processing fee, BUT processing fee could vary between $20-$65 if request is made within 21 days- so total cost can vary between $50-$100
-Air miles program can be reached from 8 am to 4pm central time

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Cancer Organizations (not brain tumor specific)

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Stand Up To Cancer
.
Stand Up to Cancer is launching a new movement to attack cancer once and for all by pushing promising scientific breakthroughs to the finish.

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Resources to help explain brain tumors to kids!

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Young Adult Cancer Survivors Resources

This list maintained by Jessica Taylor - of the young adult cancer group in St Louis.

GENERAL INFORMATION

1. Ulman Cancer Fund Remote Patient Navigation Services, can help locate local and national resources to help with a variety of needs specific to being a young adult survivor
   
   
2. I'm Too Young For this Cancer Foundation has helpful resources, online message board support, as well as a weekly radio show with topics pertaining specifically to young adults
   
   
3. National Coalition for Cancer Survivorship has information as well as recordings of patients telling their stories about managing various issues
   
   
4. National Cancer Institute has a large amount of information for adolescents and young adults
   
   
5. American Society of Clinical Oncology has various topics discussing cancer in young adulthood, including camps and retreats specifically for young adults
   
   
6. Cancer Care has general information about topics related to cancer in young adulthood
   
   
7. American Cancer Society has discusses various topics relating to all cancer survivors
   
   
8. National Comprehensive Cancer Network has information about different topics related to being diagnosed with cancer
   
   
9. Know Cancer Resources provides resources by state for numerous needs
   
   
10. Ideas for managing sexual functioning during and after cancer treatment

LEGAL AND INSURANCE ISSUES

1. Cancer Legal Resources Center

FINANCIAL ASSISTANCE

1. Musella Foundation Co-Payment Assistance Program Helps people with Glioblastoma Multiforme who have insurance pay for treatments.
   
   
2. Musella Foundation Drug Assistance Program Helps people (even who do not have brain tumors) who do not have insurance (or who have bad insurance) get a discount for any prescription drug.
   
   
3. For assistance with Avastin: Genentech Access Solutions telephone number: 866-4-Access
   
   
4. For assistance with Temodar: Merck Phone: 866-363-6379
   
   
5. For assitance with the Novocure NovoTTF100-a device: phone: 855.281.9301
   
   
6. For assistance with Gliadel (1-866-61- 34724
   
   
7. NeedyMeds.org - Clearinghouse for all drug assistance programs



8. CancerCare Financial Assistance can help with: Transportation, Home care, Child care, Pain medication, and Lymphedema supplies. Does not cover basic living expenses (such as rent, mortgages, utility payments, or food). Assistance is need based.
   
   
9. Cancer Financial Assistance Coalition—can search for financial resources by cancer diagnosis or by type of assistance needed
   
   
10. The SAMFund assists young adult survivors with transition into post-treatment life by providing financial support through grants and scholarships. Covers many things such as medical bills, car and health insurance premiums, rent, utilities, tuition & loans, gym memberships, transportation costs. Start taking applications in June of each year.
    
    
11. NeedyMeds may provide assistance with obtaining medications that are not covered by insurance or have a very high copayment.
    
    
12. CancerCare Co-payment Assistance Foundation helps individuals with insurance cover co-pays for treatment of various cancers. Go to the website to find the covered diagnoses and medications.
    
    
13. Patient Advocate Foundation Via Livestrong SurvivorCare can help locate resources related to employment, finances, insurance, and medication co-pays
    
    
14. Although the Brenda Mehling Cancer Fund has been temporarily suspended, they provide numerous alternative resources for various needs

LODGING DURING OUTPATIENT CANCER TREATMENT IN ST. LOUIS AREA

1. HavenHouse provides lodging and support services for families who travel at least 25 miles to receive medical care at a hospital in St. Louis. Initial referral must come through a hospital referral.
   
   
2. The American Cancer Society's Hope Lodge-St. Louis provides a place to stay for those who travel at least 50 miles and receive treatment in the St. Louis area. Must have a referral from your doctor, nurse or social worker verifying treatment

COLLEGE TUITION ASSISTANCE

1. FinAid provides links to numerous different college scholarships for cancer survivors, siblings of cancer survivors, and children of cancer survivors
   
   
2. Care Commit Change offers scholarships to help young adult survivors pay for college (may be inactive, the website doesn't look like it's been updated recently)

CAREER

1. Cancer and Careers provides information on legal rights and other information related to work

FERTILITY

1. Fertile Hope provides assistance in egg and embryo freezing as well as sperm banking to survivors PRIOR to starting cancer treatment. Fertile Hope doesn't provide funding directly to patients but instead has worked with companies and clinics to arrange for discounted services and donated medications for eligible female cancer patients. When searching for participating locations, searching by state rather than zip code seems to work better
   
   
2. Fertile Hope's assistance for females
   
   
3. Fertile Hope's assistance for males
   
   
4. Additional programs which may offer assistance
   
   
5. Information for men and women about fertility before, during, and after cancer treatment
   
   
6. General information for females about cancer and fertility
   
   
7. General information for males about cancer and fertility

DIAGNOSED WHILE PREGNANT

1. Hope for Two connects women diagnosed with cancer while pregnant to women who have experienced a similar situation

PEER/MENTOR SUPPORT

1. Ulman Cancer Fund for Young Adults—Peer Mentor Network. Partnered with Imerman Angels (http://www.imermanangels.org/)
   
   
2. American Cancer Society offers an online Cancer Survivors Network with a specific message board for young adult cancer survivors

INDIVIDUAL/SUPPORT GROUP COUNSELING

1. Local support groups and other services, not young adult specific
   
   
2. Free over the phone, email info@cancercare.org or call 1-800-813-HOPE (4673)
   
   
3. Free, online or by telephone

Home Remodeling for Disability and Special Needs

1. Expertise Information and links to grants to help remodel.