Clinical Trial Details
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NCT02420067 : Screening for Endolymphatic Sac Tumours (ELSTs) in Von Hippel-Lindau (vHL) Patients
AgesMin: 15 Years Max: N/A
Inclusion Criteria:

- A diagnosis of vHL (either a carrier of a VHL mutation or vHL diagnosed by clinical
criteria, i.e. at least two vHL-related manifestations diagnosed or one vHL-related
manifestation diagnosed AND a first-degree relative with vHL)

- At least one audiological examination (including an audiogramme) and one MRI
examination of the brain also visualizing the inner ear within 12 months of each

Exclusion Criteria:

- Children under the age of 15 years
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