Clinical Trial Details
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NCT01018082 : Longitudinal Study of Neurologic, Cognitive, and Radiologic Outcomes of PHACE Syndrome
AgesMin: 4 Years Max: 6 Years
Inclusion Criteria:

1. Fulfills definite or possible PHACE syndrome diagnostic criteria, per consensus
statement November 2008;

2. Child is between 4-6 years of age; and

3. Parents able and willing to travel to our center (Medical College of Wisconsin) for

Exclusion Criteria:

1. Patients with known genetic disorders in addition to PHACE syndrome;

2. Patients unable to undergo adequate MR imaging due to pacemaker or other
MRI-incompatible implant(s); or

3. Non-English and non-Spanish speaking patients will be excluded due to
interpreter-related inconsistencies in neurocognitive testing. Clinical Evaluation: A
standardized electronic data collection form will be designed. Demographic data,
clinical -
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