Clinical Trial Details
Braintumor Website

[Information provided by: ClinicalTrials.gov, which provides patients, family members, and members of the public easy and free access to information on clinical studies for a wide range of diseases and conditions.]

NCT01018082 : Longitudinal Study of Neurologic, Cognitive, and Radiologic Outcomes of PHACE Syndrome
PhaseN/A
AgesMin: 4 Years Max: 6 Years
Eligibility
Inclusion Criteria:

1. Fulfills definite or possible PHACE syndrome diagnostic criteria, per consensus
statement November 2008;

2. Child is between 4-6 years of age; and

3. Parents able and willing to travel to our center (Medical College of Wisconsin) for
evaluations.

Exclusion Criteria:

1. Patients with known genetic disorders in addition to PHACE syndrome;

2. Patients unable to undergo adequate MR imaging due to pacemaker or other
MRI-incompatible implant(s); or

3. Non-English and non-Spanish speaking patients will be excluded due to
interpreter-related inconsistencies in neurocognitive testing. Clinical Evaluation: A
standardized electronic data collection form will be designed. Demographic data,
clinical -
LinksPermanent Link to THIS page: https://virtualtrials.com/nct/display1trial.cfm?nct=NCT01018082      |      Link to official Clinicaltrials.gov listing
Locations



Home | Brain Tumor Guide | FAQs | Find A Treatment
Noteworthy Treatments | News | Virtual Trial | Videos | Novocure Optune® | Newsletter
Donations | Brain Tumor Centers | Survivor Stories | Temodar®
Fundraising For Research | Unsubscribe | Contact Us

Copyright (c) 1993 - 2019 by:
The Musella Foundation For Brain Tumor Research & Information, Inc
1100 Peninsula Blvd
Hewlett, NY 11557
888-295-4740