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  • Question: My wife’s best friend's 7-year-old daughter was just diagnosed with pontine glioma on her brain stem. Every doctor we talk to here in Miami say there is no hope. I believe many are scared to attempt anything due to the lawsuits so common here in Florida. Is there anything we can do for this little girl? Are there any experimental procedures that could be attempted to save her? This little girl is her life.
  • Answer:01/17/2005
    Search on the site for places where clinical trials are underway. There are two types of brain stem tumors and each requires quite different therapy with different outcomes. The most common, a diffuse pontine glioma is not curable and survival is a few years. If it happens to be a focal type, which is unusual in the pons, then other options are possible including surgery. A pediatric brain tumor center will easily tell the difference.

This site is designed for educational purposes only and is not engaged in rendering medical advice or professional services. The information provided at this web site is of a general nature and is not intended to take the place of a physician's advice. We encourage individuals to discuss what they find on this site with their healthcare providers. The answer above was provided by a volunteer, based solely on their experiances and thoughts. These volunteers do not get paid and are not responsible for the accuracy of their responses. IF you disagree with a response, let us know and we will look into it. The query string is topicid=3&id=1769&sr=1

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