Last Updated: 5/27/18
This policy is subject to change. The first time you visit the website after the policy changes, you will be asked to agree to the policy.
What type of information does we collect and how is the information used?
For Donors to our organization: We collect your name, contact information and possibly your relationship to brain tumors. We do not collect your credit card information. This information is used internally and is never shared or sold to any other person or organizations. We may send you a mailing at least once a year telling you of our accomplishments and requesting another donation. You can easily opt out by telling us to remove your name from our mailing list.
For participants in the Virtual Trial project: We collect your details medical information including: Your and your contact person's name and contact information, your doctor's name and contact information, as well as your diagnosis, treatment history and medical reports. We are in a collaboration with xCures and Cancer Commons to help analyze the data. We will share your information with them. None of these organizations will sell or share your personal data.
For visitors to our website:
If you voluntarily fill out a form, we will collect the information from that form. That information will be used for the intended purposes of the form and will not be shared or sold to any other person or organization. For example, if you order a "Guide For The Newly Diagnosed", we will use your contact information to mail you a copy of the guide â€“ but you will not be put on a mailing list to solicit donations.
Infomation we collect automatically without you expressly giving it to us:
Certain information will be collected from all visitors to any of our websites listed above:
- Your web browser will automatically send and we may retain information such as:
- Your IP address and location
- Type of software you are using
- Which site you were on directly before going to our website
- Your domain name
The reports we get do NOT show your name or provide any way that we could tell who you are. They just show us aggregate information such as how our visitors got to our website, what browser they use, general location, and the language used. There is no way to opt out of this tracking.
Credit Card Policy:
How Long We Keep This Information
We may keep information we collect forever. You may request that we delete all identifiable information that we have on you at any time.
IF we are compelled to divulge your information by law enforcement, we will
All of our services are free to you, including: our extensive video library, our "Guide for the newly diagnosed brain tumor patient", online support groups, extensive library of original articles, brain tumor news blast, toll free patient help line, co-payment assistance program, drug discount card program and much more.
These programs cost a lot of money to provide to you. We (the executive board of the Musella Foundation For Brain Tumor Research & Information, Inc) have decided to accept sponsorships and advertising on our website and newsletters to offset these costs, instead of charging you for this potentially life saving information. Our thoughts are that our efforts can help the most people if it is free to them, so we accept advertising and sponsorship.
Most - or all - of income from sponsorship and advertising comes from the companies that make products needed by the brain tumor community. Sponsorship is in the form of unrestricted educational grants. These companies are acknowledged on our sponsors page. There are policies in place to prevent any influence of the sponsors on the editorial content of this website. Our editor is a paid employee of the Musella Foundation For Brain Tumor Research & Information, Inc, but his salary is in no way influenced by any of the sponsors. The salary is not based on how many sponsors participate, how much they give or if we lose a sponsor. His salary is set by the executive committee without any input from the sponsors.
We reserve the right to reject any advertising that is against our mission and will not accept any advertising that we feel is not in the best interest of brain tumor patients. The appearance of an advertisement on virtualtrials.com (or in our newsletters or support groups) is not an endorsement of the sponsor. We are not responsible for the content of the ads. We suggest that you look at the ads and if the product or service looks good to you, bring it to your doctors and discuss it with them.. Our main purpose is to give you the information you need to find and understand the options - not to make the decisions for you.
All advertising on the site is will be clearly identified as advertising and is kept separate from editorial content - always enclosed in a box that says SPONONSORED BY or SPONSORED LINKS. The sponsors do not sponsor a particular page - the order of the banners is random. Every time you reload a page, the banner ad changes to the next sponsor in the rotation. The only exception to this rule is the trial listings - where we allow sponsors to select the category to sponsor such as trials for a particular tumor type, treatment type or geographical area. Those ads are clearly marked as SPONSORED LINKS and are always for a trial for the selected category.
We make every effort to provide you with balanced, responsible, encouraging, and thorough information. All content has been reviewed by health care professionals. In some cases, articles are written by patient advocates - these articles are always reviewed by a health care professional before being posted on our website. The only exception to this rule is the survivor stories - which are written by the brain tumor patient or caregiver. We feel that it is not appropriate to change their words.
We maintain complete editorial independence and separation from advertisers and sponsors at the site. None of the content is screened, altered, or edited by sponsors at any time.
- If you make a donation online and change your mind within 24 hours, use our feedback form and tell us to cancel the donation. After 24 hours, call us at 888-295-4740 and we can cancel the donation only if the tax receipt and/or acknowledgement to the family hasn't been mailed out yet.
- If you make a donation by mail and want to change your mind, call us at 888-295-4740 and we can cancel it only if the tax receipt and/or acknowledgement to the family hasn't been mailed out yet.
- If you buy a ticket to one of our events, you can cancel and get a refund up to 48 hours before the event. Call us at 888-295-4740 to cancel. If you received an actual ticket in the mail, you must return the ticket at least 48 hours before the event so we can resell it.
Bad Check Policy
There is a $25 charge for bounced checks plus the amount of the check.
If you purchases something from us, we will ship it within 1 week, with the exception of tickets which we usually (check event page for details) ship a few days before the event. If you need something in a hurry - call us before ordering and we can tell you if it is possible to ship it immediately!